I wasn't sure if I wanted to blog this, but I thought it would be weirder for those who do know me if I didn't mention it at all. And since I'll be adding some links pertaining to this, it would seem a little out of the blue if I didn't go into at all.
In July last year I woke up with pins and needles in my hands. I blamed my already crocked back and my kicky sister, with whom I had shared a bed the previous night. The pins and needles then spread to my feet and then I went pretty much numb from the thighs up. You know that old trick where you put your index finger against somebody else's finger and rub over both at the same time, the corpse trick? That's what it felt like. The cherry on top was the phantom itch, which nearly drove me up the wall and out of the nearest window.
I dragged myself to a doctor, and then another doctor, and then another doctor, who referred me to a neurologist who sent me for tests. For future reference, MRIs are best survived by pretending you're in an episode of Star Trek. Try not to visualise the apocalypse, or focus on the sudden itch you'll develop on the tip of your nose.
That neurologist sent me to another neuro, and that led to a lumbar puncture and another trip to the MRI (see above for survival information). I got the results on Monday, and the upshot is that I'm officially in limboland. The cause of my woes was transverse myelitis, which caused the de-myelination of an area in my neck (basically the myelin covering that area has degenerated). They assume that this was prompted by a bad case of flu I had when I was in Mozambique last year. It caused my immune systerm to go into hyper mode and it began to attack that area.
A small percentage of these cases go on to develop multiple sclerosis (like 20% in medical terms), which can be confirmed by the presence of oglioclonal bands in the spinal fluid they withdraw during a lumbar puncture. I have those bands, which is why I'm in limboland. If I have another episode, then that confirms I have MS. But that could never happen. It probably won't. I'm sure as hell not waiting around to find out.
In the meantime, I'm grateful that it wasn't as bad as it could have been (a few millimetres higher, and I would have stopped breathing, a few millimetres lower and I would have ended up in a wheelchair). I'm even more grateful that it happened here and not back home. The only lasting damage is lack of feeling in my fingertips, some weakness on my left side and the phantom itch, which is being taken care of by the blue pills, praise be.
But I'm a walking, talking, world-dominating and soon-to-be deified Liz. So it's all good.
PATTOTE: Better living cause I take the blue ones every time
2 comments:
Fucking hell, Liz. That sounds scary as hell. I admire your optimism. Steadfast denial of the piffling 20% is the way to go in these situations.
I almost wrote some helpless shit along the lines of "I hope you don't get MS." Well, I do hope that, but it's pretty obvious that I would. Maybe if I add a few reallys, as in "I really, really, really, really hope..."?
Anyway, Sterkte, and all...
Denial - it's not just a river in Egypt. Platitudes from you would be far scarier.
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